Posts Tagged ‘patient advocacy’

A prescription of hope

Author: Guest, 08/29/17

By Brian Sladek I am honoured to have my blog be just one of several covering this topic as part of Signal’s second annual blog carnival on the theme ‘Right to Try.’ Please click here to read what other bloggers think of this. As a patient, I don’t care about percentages. According to a recent SEER…Read more

An ivory tower perspective of the right-to-try movement: We need to balance the equation

Author: Guest, 08/29/17

Patrick Bedford is the Senior Manager of Clinical Translation and Regulatory Affairs at CCRM. He holds a Master’s Degree in Bioethics and Health Law, and a Regulatory Affairs Certificate. Patrick has spent over 11 years applying federal regulations to emerging biotechnologies in Canada. Follow him on LinkedIN. Do desperate times call for desperate measures in the context…Read more

Right Turn: My question to Paul Knoepfler: Do you ever sleep?

Author: Stacey Johnson, 03/10/17

Paul Knoepfler, already well known for his prolific blogging at The Niche and for his role as a stem cell educator and tireless patient advocate – award winning no less – has taken on another project. Ask him a question about stem cells and you may get a live response. On February 26th, Dr. Knoepfler,…Read more

A Californian approach to working with patient advocates

Author: Lisa Willemse, 12/06/13

> To be, or not to be, that is the question: Whether ’tis Nobler in the mind to suffer The Slings and Arrows of outrageous Fortune, Or to take Arms against a Sea of troubles, And by opposing end them We know this famous soliloquy from Shakespeare’s Hamlet, but the words take on a different…Read more